Chapter 21: Speech or lack thereof

 Over the past few weeks, it has become more and more difficult for Jeremy to speak. For a while his speech was slurred but understandable. Then the slurring became worse and it was hard to understand him. Lately, the act of trying to speak is a huge challenge.

When he needs or wants to say something, he usually takes a deep breath and then says a word at a time. He is an articulate person but the process seems exhausting. I can only imagine the frustration.

He now has an eye gaze machine, which is basically a computer that can speak for him. He can program phrases or spell out sentences a letter at a time. Either way, it’s difficult to be part of a conversation. Plus, the machine has a limited number of voice options so he won’t really sound like himself. Still … I hope he will give it a try. When he has things to say, we definitely want to hear him. 


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