I really didn’t know much about ALS. It’s called Lou Gehrig’s Disease. People end up in wheelchairs. Stephen Hawkins had it for many years.
Here’s a little bit of what I have learned:
- ALS can progress very quickly. At the end of August, a person might be able to walk, talk, and eat fairly normally. Nine months later, he may be confined to a reclining chair, unable to walk, talking through a computerized device, and eating through a feeding tube.
- ALS is relentless and unforgiving. Bit by bit, day by day, muscles die and daily functions like driving, cooking and buttoning shirts become impossible.
- The ALS community is small but mighty. There are support groups, community resources, hospice providers and amazing organizations like Team Gleason and Live Like Lou that provide equipment, scholarships, connections and hope to families dealing with the challenges of ALS.
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