Chapter 19: Plateau

 ALS is a relentless disease - but there are times when things stay stable. This week was calm and quiet, with no new symptoms or indications of decline. Jeremy is pretty accepting of his “new normal” and he spent quite a bit of time today watching football with the whole family. 

Yay for calm and normalcy and football! The little things absolutely matter. 

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Chapter 30: Wheels

 Over the last couple of days, it quickly became apparent that lurching down the hallway was not going to be sustainable. The hospice nurse ...