I don’t have ALS. My son in law does. I will call him Jeremy, because that is his name.
As I write this, it’s mid-November, 2025. The official diagnosis was on August 25th but symptoms started very subtly about nine months ago.
First, he noticed that he couldn’t sing. Not a huge deal but weird. By his birthday in March, his speech was slurred. A close friend told his wife (my daughter Jess) that he thought something was wrong,
In late May, the slurred speech was more noticeable. Walking short distances made him exhausted. Breathing seemed difficult.
By August he was having fasciculations (muscle twitches that are an indicator of ALS), his hands were curled inward, and the diagnosis was issued.
Now, he struggles to speak. He works half days because he is extremely stubborn, but the time will come soon when he will need to stop. His hands are stiff and curled but somehow he manages to carry on.
Jess and I are making small accommodations. She helps him dress. I load up his coffee maker so he can just press a button. We both cut up his meals before serving them. The constant fear is, what will happen next?
No comments:
Post a Comment